It all started so long ago

I think I knew from they day Nellie was born she was different. Janelle came into the world at a tiny weight of 15 lb.'s 15 oz.'s, much smaller than my other four children. She had a single vessel umbilical artery which went unnoticed until she was born, but otherwise seemed healthy at the time. I remember looking at her in the hospital and just feeling something was off.
Nellie was a good baby. She never cried, NEVER!!! We would feed her every four hours and check her diaper all the time because otherwise we wouldn't have known when she needed something. Everyone said she's such a good baby.
At three months Janelle decided to give me the scare of my life. She gasped and throw up her arms and legs. I practically threw her at my husband telling him to fix her. My mother quickly rushed over and held Janelle who after ten minutes was still groggy and drooling. We took her to the ER and had to follow up with the doc. We were later told this was acid reflux, something I never agreed with. The gasping spells happened a few more times while she was an infant. It was to the point that she did it to our sitter who then refused to watch her.
At five months Janelle was diagnosed with nystagmus (shaking eyes). I remember crying when the eye doctor said she may be legally blind, thankfully she isn't. She is listed as visually impared though.
It was after reading up on nystagmus I found out we needed to call in Early intervention. At this point Nellie was about 8 months old. I knew she wasn't hitting her milestones like other kids, but already having four children besides her I knew all babies were different.
After weeks of evaluations it turned out she was further behind than I could have ever imagined. At ten months she began to receive speech, occupational therapy, and a vision teacher. She was also diagnosed with a feeding delay.
Fast forward now two years. Janelle is still receiving a lot of services and was just switched over to our school districts special education. She was scored at having an IQ of 70, and is falling so far behind on everything she must now start a special education pre-school at two.
I was so upset with everything I finally knelt down and prayed. I asked God to give me some answers on my sweet little girl and he just may have. In the past month and a half Janelle has been getting cafe-au-latte spots all over her. This may be the clue to everything. She goes to a neurologist on August 11th to be tested for neurofibromatosis. Though it's terrible to think your child has something wrong, I've always known. It's time now I know what it is and what our next steps should be.
Keep Nellie in your thoughts as she goes to be checked. Please think of our family and that we may finally know what is causing her issues. I'll keep this blog updated as Nellie's journey continues.